And So It Goes

This has been the most difficult post to write. Which is probably why it has taken me so long to attempt it. I guess maybe I thought if I didn't acknowledge it, it wouldn't be true.My brother died.This post is for him.

♡

These are things that my brother loved:

• my sister-in-law
• music
• laughing
• beer
• cigars
• basset hounds
• his car
• guitars
• correct grammar
• really good music
• Neal Peart
• going to his weekend property
• the album Asia by Asia

 "The Heat of the Moment" has a distinct drum rhythm, and when John was learning (rather, teaching himself) how to play drums, he would start that LP over and over at the very beginning, put on his headphones, and drum out the beat on the one practice snare drum that he had gotten for Christmas two years before, when my parents were still married, and probably hoped that all those years of paying for a rental trombone wouldn't be washed away by a shiny new drum. It replaced the beat-up square of leftover carpet that he'd been using up until then. Actually I think the drum was a gift from my Grandpa. Which makes sense because it was just the type of gift my grandpa would give - something to impress everyone else. Something that was a little expensive, and something that was close to the kid's heart but his parents were on the fence about, so you bought it for him and instantly became the hero.

I'm assuming the trombone was either rented, or a loaner from the school; we wouldn't have been able to afford a new one. I imagine he was probably allowed to buy a used horn a after a few years of sticking with it, and starting the drums would have to be a side project. He would go on to play trombone in the school band all the way to graduation (and later in college, majoring in trombone), filling in on the drums here and there for practicing in the bandroom, and starting a garage band on the weekend with his buddies. (What's up, Northern Lites?) As a senior, he actually got to march with the drums.Anyway, the snare drum had to have a towel stuffed in it to mute the sound of the drumming, because if there's any noise that gets annoying after a while, it's a sixteen year old boy teaching himself to play the drums by playing the first two minutes of an 80's schlock-rock band over and over and over and over.BOOM - boomboom - TAH! BOOM - boomboom - TAH!Drummers, you know what I'm talking about.Asia was was right after my parents got divorced, and me, my brother and my mom had all moved into the apartment above my soon-to-be stepdad's photography studio. I guess I was the only one who just thought it was incredibly convenient and not involving any other sort of coincidence that there just happened to be an attic apartment for rent in the 3-story Victorian home on Main Street that housed a studio, office darkroom, and private residence of the man who would marry my mother less than a year later. But things tend to go over my head.I don't think anything EVER went over John's head, which meant he had put 2+2 together, and realized why we lived in the same house with this man, and just what was going on when work ran into the evening hours. Which explains why he was so pissed off all the time, and pounding on that drum as if it had just committed some sort of offense.Which is why music saved my brother.I honestly have no idea what kind of person John would have become had it not been for the saving grace of Music.It was his confidant, his confessor, his therapist, his "safe place."He hadn't had the easiest life. When we were very young, he had some tough experiences, which for the sake of good manners will remain private for now. But nevertheless, at the time these things were happening to John, publicly he had to put on a good face, be the happy kid; the good son. And when he had time to himself, the only thing that kept him from acting out his rage destructively, was music.Before Asia - before the divorce and during everything that led up to it - Our parents' records - The Sound of Music and Mary Poppins soundtracks (our mom used to sing us to sleep with "Stay Awake," and evey chore was accompanied by "A Spoonful of Sugar"), John Denver An Evening With John Denver and Neil Diamond Hot August Night; there was the Big Band Era - Glen Miller, Buddy Rich and Benny Goodman; 70's rock - The Who, Led Zeppelin, Jimi Hendrix; 80's everything - Journey, Michael Jackson, Rush (of course), and Billy Joel. We borrowed the Billy Joel LP, Glass Houses from the library so many times we had to buy it.In addition to playing First Chair Trombone, John added a cymbal and base drum to his set and moved it to the basement, and wasn't allowed to play too late into the night. But during the day, if you were within a quarter mile of our house, you would say, there goes that Giovannoni kid again on those drums.I remember one time, being in the attic bedroom, singing along to Pat Benatar, and hearing John practicing down in the basement, there was some type of military fly-over, and I heard my first actual Sonic Boom. I thought John had just hit the drums really hard.So as the family split apart, more pieces got added to the drum set as he saved his money: a cymbal high-hat, a tom-tom drum, some type of smaller drum that I don't even remember the name of, and so on. Then we moved away. From our familiar small town to a bigger, busier, medium-sized city. The high school population was triple that of our home town, and in an area not far from the projects. He lasted one day at that school, then decided living in my dad's 2 bedroom, one bath rental apartment in the country and going to high school with his friends was a much better idea. So he moved back with our dad, and I stayed with my mom and stepdad. I considered the whole moving thing kind of an adventure, and besides, if I was going to be a Movie Star, I had to get out of that small town.The next summer, the three of us, my mom, stepdad and me, moved to Arizona. I would go home to the Midwest at Christmas and on summer vacation to see my dad and John, and my "wicked stepmother"—which is what we jokingly call my awesome, amazing stepmother, who pretty much everyone agrees was a gift from God. At Christmas, we would go to all of my Italian family's houses for dinner. There would be lots of eating, lots of loud talking and laughing and drinking and smoking and laughing. And kids running around being noisy, and music playing. And probably some yelling in there, too.I would show off my latest stupid 80s haircut, and—as my cousin Brad never fails to remind me—wore a pair of white Van's on which I had painted the proclamation FEED THE WORLD. I also sported some wicked eye makeup. More than any 15 year old has a right to wear. But hey, I was breaking out. I was finding myself.John wore his signature Levi's, white Oxford button down, leather loafers, a sport coat, and an Alex P. Keaton-inspired necktie. He was gorgeous, but didn't think so. He'd be at the ancient upright piano in my grandmother's basement, and since it was the only musical instrument around, he sat there, on the bench, tinkering with the keys, playing around, finding the notes he was looking for—and that's how he started to teach himself to play the piano. Sometimes my cousin Nathan would sit with him, and talk while my brother played, since they were of the same away-from-the-noisy-crowd disposition. His defense was to either separate himself, or be the most obnoxious one in the room. Having a guitar meant he could be part of the action, but still have something to hide behind.But I really didn't see much of John on my visits home. We had different friends, and the older sibling seldom welcomes the younger sibling into their group of friends. Especially guy/girl variances. When your best buddies want to date your sister, you tend to want to keep your sister as far away from them as possible. So we didn't do a lot of stuff together. Besides, I was too busy hanging out with my own friends in between family outings. My friend Tracy and I were pretty much joined at the hip. I'm still looking for the scar that shows we were somehow surgically separated.And the places John would be? Practicing songs with his band, Northern Lites; or hanging out in the choir room at school. Our choir teacher, Mrs. Keene, band director, Mr. Cerveny, and John's piano teacher, Mrs, Schiller, were the human counterparts to his music therapy. They each took equal parts in saving my brother from himself. The choir room, that ancient basement sanctuary, where John would be joking around with his friends or flirting with his girlfriend as she sat at the piano. The girl that he broke up with a year later when she went to Minnesota for school, and kept in touch with over all the years and after they each had a string of relationships, and each a failed marriage. The girl, who after all of that, 25 years later, would become his wife, Chris. Yeah, that girl. The one who always knew him, who understood him, and who had his heart.And in that 25 year span, he went to college, dropped out of college, tried a move to Arizona—which was cool, because we got to hang out together—but ultimately decided AZ was not the place for him, packed up his drums in the '69 Caddy and drove all the way back home to Illinois. And I went to college, dropped out of college, moved to Chicago, failed miserably, moved back to AZ, went back to college, met my husband, dropped out of college again, and got married and started raising a family of smelly boys who idolized their smelly uncle.In that time, John and his then-girlfriend, Carol, began an adventure that neither of them would believe would become what is is today, 18 years later: the award-winning landmark of downtown Palatine, The Music Room.He had gone back to school, attending nights first at Harper College, then went on to Elmhurst College. During that time, he traveled to Europe with the jazz band. Switzerland, Ireland, Malta, Italy and probably a few more spots. He received his degree in Music Education at age 35 (and is hugely responsible for inspiring me to go back to school to pursue my own degree now - in Art Education - at age 43.)Though their romantic relationship ended, John and Carol's friendship and business partnership only continued to grow. They built The Music Room into not only a space for retail and rental instruments, but a gathering place for musicians to both teach and learn. They have also given back to the community with their Gear Shift donation program for used instruments.http://youtu.be/KxjRCVbm9acBut The Music Room was so much more than John's business or job; it was his life. (Second only to his love for my sister-in-law Chris, and the time they spent together at their weekend place, going to local spots for dinner, or just having quiet time at home or with family.) And it shows in the hundreds of comments we have received from former students, their parents, and patrons of John's, as well as members and friends of the band he formed, The Big Cluster Big Band, and former band mates of Simply Vintage.Who could guess that one day you'd get a call, something about a brain tumor, and fourteen months later you are saying goodbye.*And here I am suddenly an only child, in a spinning haze of life going on regardless of the fact that my brother is gone. Going to class, filling up with gas, shopping for groceries, watching TV, taking a shower, having dinner, feeding my horses, checking one kid's homework, and the other kid's college plans, making lunch for my husband, all the day-in day-out stuff that I always did.Only now it's this weird reality. I have more sympathy cards on my kitchen cabinets than I had Christmas cards this year. People I haven't heard from in years, reaching out to me with folded-paper hugs. It's so bizarre. So wonderful and sad at once.And maybe it's taken me so long to write this because in all the business of everyday life, even with the cards and phone calls, even with the times that the realization has knocked me sideways, it really hasn't hit me until now.We didn't  have the perfect relationship (who does?). We didn't talk everyday, or even every month. But the thing about me and my brother was that we didn't need to. We just got each other. In a way that not even my parents, my husband, my kids, even my best friends - John understood me, and I him. That's the biggest thing I will miss. The one person who knew me better than anyone else, is not here anymore.Not here, perhaps, but not gone. He was sitting on my shoulder the whole first week of classes, cheering me on. He's with my sister-in-law, watching over her and trying to help her feel like she's not alone. He and my grandpa are puffing away on cigars, keeping an eye on our parents. He's with his buddies, calling them all a bunch of no-good shitheads. He's with his nieces and nephews hopefully making sure they don't get into too much trouble, but probably snickering when they do. And he's definitely at the store, his baby for the past umpteen years.It's just...selfish, I know, but I just wish he was still here.Things I've learned over the past year:Laughter is the best medicine.True love won't let time or space get in its way.Never underestimate the power of being nice to people.Forgiveness is hard.Oncology doctors and ICU nurses are in a class by themselves.Frampton Comes Alive is an album that should be listened to all the way through, over good food, with people you love.A year goes by way too fast.This was played for John at his Celebration of Life. I couldn't think of a better song:http://youtu.be/FHO6a2H-pqYMore about John here, here, and here. And on YouTube here and here.*also: I just want to say Kudos to Valerie Harper and thank her for being so open, brave and honest about her recent diagnosis. Hopefully by bringing more attention to brain cancer, scientists and doctors will be able to come up with more effective treatments for this brutal disease.

Thanks, as always, for reading. xoxo heidi.For information or to donate to the John Giovannoni Memorial Scholarship Fund, click here.please feel free to leave a comment below.

Happy Thanksgiving

Today I was listening to a discussion on NPR about retail businesses being open on Thanksgiving day, and how right or wrong that decision may be. One of the things I love about public radio is the fact that they support open debate over many topics, with views from both sides.One person was saying that hey, it's a business decision, it's part of the economy, it's the way things are going now, with such a competitive retail market - stores having to compete with online retailers, yada yada yada.Another was saying yes, but what is it doing to our society when we can't even have ONE DAY where folks can take time off and spend with their families?The response to that was, well, what about all the people NOT in retail who have to work anyways? Police, firefighters, hospital workers, etc. Add to that the fact that many retail workers were jumping at the chance to work the holiday, for the extra pay. Who are we to say they shouldn't work if they want to?Then a comment from a caller came in, so angry and vehemently AGAINST the idea that anyone should work on this holiday, and that it just makes everyone look like greedy slobs, having to make money, or needing to go out shopping for that amazing deal only offered at midnight turkey madness. And how embarrassed she was to call herself an American, and lots of other vicious spewing.To which I say:

Can't we all just get along?

Personally, I think part of the problem with society today (yeah, I'm going there) is that everyone is looking to blame somebody else for everything that has gone wrong in their life, in the country, the world, you name it. The Conservatives blame the Liberals; the Muslims blame the Jews; the Christians blame the Atheists; the Blacks blame the Whites, who blame Everybody Else - and vice, vice, vice, vice versa.

DUDE.

JUST BE NICE TO PEOPLE.

I'm so sick of it. It's like a bunch of kids on the playground, all pointing their fingers at each other:

He did it!No, HE did!She did it first!

Maybe it's having a brother with a tumor in his head that puts it all into perspective. The Jews, Blacks, Conservatives, Muslims - nobody put that tumor there. Not even God. It just is, and it sucks. It sucks that he has to go through a week of heavy-duty physical therapy just to be able to remember how to put his pants on or tie his shoes. It sucks that his wife is so worried and stressed out that she had to be hospitalized as well.So when I hear people bitching about how horrible it is to want to work or shop on Thanksgiving, or, Christians telling people they will "go to hell" if they don't believe in Creationism or have an abortion, or Hamas bombing Gaza because of WHATEVER IT HAPPENED A THOUSAND YEARS AGO. Just fucking love thy neighbor and get over it.So tomorrow, break bread, even if it's with people who irritate you or done you wrong or stole your boyfriend. Just be Thankful you have someone to break bread with. Be Thankful that you have bread to break. Be Thankful that you have the ability to read this, and computer access. Be Thankful that your house didn't get washed into the ocean. Be Thankful that you can sit around the table with those you love. Even if you less-than-love some of them.And be Thankful that you don't have a tumor in your head.And if you do have a tumor in your head, I love you. I'm sending you a big hug.And be nice.Happy Thanksgiving.

An Ode to my Brother...by the way, you smell.

For the 5 people who read this blog, sorry I haven't written.But what do you say when you don't know what to say?You just say it, I guess.My brother has a brain tumor.I mean, how else do you put it?Fucking cancer.This is my brother John.

1970

1984

2009

When I was 5, John and I were playing in the sandbox. I was pissed at him for putting rocks in the sand, and he was pissed at me for putting Barbie in the Tonka truck. I said to him,

"I dont' give a..."

I paused, and then dared to say it:

"DAMN!"

John promptly jumped up, and ran inside to tell on me. I had my mouth washed out with soap. I can still taste it. To make things worse, we got the extra special treat of going to McDonald's for dinner that night (just think, it was a treat back then) and not even a vanilla milkshake could get the taste of soap out of my mouth. I think John felt guilty for telling on me, because he had no idea how severe and painful the punishment would be. Or how much he would have to listen to me bitch and whine about it. He patted me on the back.

And that's how big brothers are. One minute they're throwing you under the bus, and the next minute they're making sure you're OK.

Our younger years had alternating moments of fighting like cats, and then laughing hysterically. Riding somewhere in the car could either be complete torture:

"He touched me!""No, she touched me!""Move over!""When are we gonna get there?""He stuck his tongue out at me!""Stop it!""Mo-om!"

Or a contest to see who could keep a straight face the longest while the other made funny faces. It usually ended up with stuff flying out of our noses because we were laughing so hard, and our dad threatening to:

"...pull this car over right NOW, and you can walk to Grandma's!"

Which always shut me up because I had no idea how to get to Grandma's, and was usually wearing very uncomfortable shoes.

Then we went through a phase where we literally wanted to kill each other.

Normal, right?

Then we became friends.

It started right around the time when we both realized that our parents were going to split up, in our early teens.  The funny thing is, even though we spent the rest of our lives apart (he with my dad and me with our mom, and then in different states), we've always been very close.

We haven't spent nearly enough time together. There was always going to be that time, you know, in the future, where we would have some sort of camping trip together, and hash out all the family bullshit, and have this totally immersing bonding session.

In no way could I have imagined that the totally immersing bonding session would take place in a hospital room after a meeting with a neuro-oncologist.

But we did. My brother, his wife Chris and I had an incredible roller-coaster of a week together.  We laughed, cried, held hands, ate chocolate, and thanked god for the incredible ICU nursing staff at Evanston Hospital. My sister-in-law, her family, my parents and myself had a constant rotation so that my brother would always have someone in his room with him. I learned how to sleep on a waiting room couch, and the quickest route to the cafeteria. Thank goodness they had Starbuck's coffee.

John & Chris

Then when he got to go home, I busied myself with cooking, tidying and running errands so the two of them could relax. I cherished seeing them in their home. Sitting together and having a meal. Browsing through Christmas catalogues. Looking at all of the things that make them happy - their books, music and movie collections. Pictures of friends and family. Carefully placed model airplanes make with painstaking detail by my dad, and given as birthday gifts. Art made by nieces and nephews, in places of honor on the refrigerator door. I wanted to absorb it all, make it a part of a memory so that when it came time for me to go, this is where I can picture them from a distance. My brother's guitar in the living room, and drum set in the basement. The piano in the front room.

on their wedding day

We celebrated John's small victories, like being able to sleep for a couple of hours, or take a shower, or take a shit. Then, too soon, he had to go back to the hospital, in an ambulance, with a debilitating headache. This time, a different facility, and the care was not so nice, or professional. The doctor assigned to John was something out of a movie - on the worst ego trip imaginable, and not one shred of empathy. His nursing care was lacking in decision-making abilities and any type of follow-through, which resulted in us watching my brother going through the most gut-wrenching, heart breaking pain I've ever witnessed in another human being. My incredible sister-in-law Chris completely (and rightly so) lost her shit on that doctor, and read him the riot act that he deserved. I stood right next to her and backed her up as well as I could - not that she needed it - mostly by nodding and saying, "yeah."

getting ready for an MRI

Then my week was up. I had to say goodbye to them in the hospital. Thankfully he went home the next day, under new orders for levels of steroids that he'd been taking to quell the rate of swelling in the brain due to the tumor.

He's halfway through his radiation/chemotherapy treatment now, and goes through daily ups and downs. As the tumor reacts to the treatment, it flares up and pushes on different areas of the brain, causing different side effects. One day he went completely blind for two hours. His taste buds have gone wacky and some things that he really wants to enjoy - like beer - have a bitter or "off" taste. He'll have numbness or pain in his hand and wrist, which for a musician is particularly frustrating. He takes his chemo in the form of a pill, in the evening, and he says that in the middle of the night, he can feel his body reacting to it. It's hard to sleep.

We try to make sure to talk every few days. We check in with each other, the three of us, and talk about what's going on with him physically, what he was able to to that day, we talk about my kids, and about our parents and how well or not-so-well they are handling the situation. But mostly we just talk.

I have to say, my brother is an amazing person. He'll be the first one to argue against that. He'll say what an asshole he's been over the years to various people, or that he should've done this, or shouldn't have done that. But I don't see that. Maybe it's the nature of being the little sister, but I have always, ALWAYS, looked up to my brother.

• He's an amazing musician - he started out playing the trombone in Junior High, then, listening to big-band records,
• taught himself how to play drums (starting with one snare drum and a spare piece of carpet to pound on),
• then, by monkeying around with various pianos, whether it be at church, school, or Grandma's house, taught himself how to play piano,
• then had to have an incredibly patient woman (Holla, Sue Schiller) re-teach him to play properly and read piano music,
• then went on to play guitar...he's one of those disgusting people that can play pretty much any instrument you put in his hands.
• He worked his ass off,
• put himself through college in his early 30's,
• finally married the love of his life (took you long enough!)
• and has been co-owner, teacher, and all around badass guitar specialist extraordinaire at The Music Room in Palatine Illinois, with his partner of 20 years.

His biggest joy as a businessman is helping a kid get set up with his first guitar. Finding the right fit, and seeing their faces light up when they strike the first chord. He's goofy as hell, a kid at heart, really, and just loves what he does. That's why everyone around John loves him.

The evidence is in the hundreds and hundreds of emails, texts, cards, posts on his Facebook page, and on the Caring Bridge site that Carol, his business partner and longtime friend, set up for him. Carol put out the call to their wide-reaching community of friends for a Christmas ornament drive, since John and Chris had no energy to haul out decorations, and on Christmas Eve, when the family was away at my cousins' house for family celebration, Carol and her boyfriend Rick, along with a host of volunteers,

set up a Christmas tree with hundreds of ornaments sent from near and far with love from everyone they knew, and cards with messages of hope and cheer for John's health and recovery. It was truly inspiring.

In closing, I'd like to add one more note. Our family recently suffered a loss in the death of one of our cousins. Second-cousin to John and me, he was just a bit older than us, and all in all, a pretty cool dude. Upon hearing the news, my brother wrote this:

Sometime between Christmas and New Year's, my cousin Paul died. Don't know the circumstances, don't know anything really. What I do know is that I never told him that he was the reason I became a drummer. He was older than me, just enough to be that really cool cousin (to my ten-year-old-brain). He had a Gold Sparkle Slingerland set that was just the bomb.Paul was sickly all his life - although I never knew that. I never heard him complain about not feeling good - don't get me wrong, Paul will go down as one of history's greatest complainers - but he never talked to me about not feeling well. He'd complain about the same stuff I would: "Why isn't Phil Collins more known as a Drummer?"We all have people in our lives that we owe debts of gratitude to; people with whom we've lost touch; people that changed us, and possibly we them. I want to ask you all to think about those people in your life, and reach out to them, somehow, before it's too late.Paul died alone. Damnit.

In response to seeing this I have to say to my brother John:

You have always been my hero. I know that sounds SUPER cheesy, but it's true. I have looked up to you my whole life. I tried to be like you, but completely failed at playing any type of musical instrument (not for not trying), and joined choir because you and Chris and all of your friends were in choir. (shout out to Mrs. Keene) If Paul inspired you to be a drummer, you inspired me to be an actor. Actor? Yes. It was after seeing you in Guys & Dolls that I wanted to be up there, on stage, having as much fun. And when I realized music wasn't really my thing, I discovered that acting was. And through that, it led to my newfound love of writing, which I could not be more grateful for.

But other than that, having you as a brother, and observing you and your friends growing up, I was able to understand the male gender as a whole. As little kids, we got dirty, we played Army, or Cowboys & Indians. We shot BB guns and climbed trees. I wore your hand-me-down Toughskins and t-shirts, tried NOT to "throw like a girl," and listened in on your Dungeons & Dragons games with James & Droop. I wanted to be a Boy Scout, not a Girl Scout. We joked about gross disgusting stuff like boogers and farts and poop. I found out what guys liked and didn't like in girls. And that, while some girls are very pretty, and these are the girls that guys like to look at, they're not necessarily the girls that guys want to hang out with. I paid attention.

And now I live with three booger-fart-poop guys, and I dig it. I sometimes wonder what it would have been like to have a sister. Especially seeing Mom and her sisters' relationships, or that of my friends. But I'm so glad I have a brother. As a guy, you taught me what kind of girl to be, and, had it not been for growing up with you, and seeing how things affected you as a kid, I would not have been able to be the parent I am to my boys. I would not have been the same person, wife or mother if not for you.

I'm glad we have this crazy sense of humor and that we can laugh at things like brain tumors, and that our nicknames for each other revolve around some sort of fecal matter. That we can vent to each other about our fucked-up family, and laugh about that, too. (more of that here.)

And I'm sure somewhere in your mind you are thinking you don't deserve any of the praise you have been getting, from me or anyone else. And you're thinking about some of the mistakes you've made over the years and wish you could take them back.

But I'm here to tell you that I would have you as my brother, as you are today, and I would not change you one iota, other than to take away your suffering. I wish you no pain, no remorse, no regret, and I wish you lots and lots of laughs. Laugh so hard that stuff comes out your nose.

Namely, that fucking tumor.

Most of all I wish and hope that we have many many more laughs together.

On a beach. Toes in the sand.

I love you.

...by the way, you smell.

Your little sister.

John

This is my awesome brother John.

He is going through a rough time right now.

Please keep him in your thoughts.

More info coming soon.